Take care, Wendell and Angel. ?ÿI am 63, and time/age work together to create health issues. Hang in there.
Love.
Angel - you and Wendell are (and have been) in my prayers for some time. It sounds like you are doing everything you can to prepare for the road ahead. It is indeed sobering to realize that one is mortal. God bless you both - keep us informed. There are a lot of folks here who really do care.
I have a co-worker who just had a kidney transplant a couple of months ago, he had a rough couple of weeks but is doing great now.?ÿ I'm not sure I'd trust that kidney donor you are thinking of though. ???? ?ÿ
Hey Guys!
Thanks for all of the warm thoughts and positive vibes. I go to my kidney doctor at the end of July. I should know more then. Hopefully my kidneys will be progressing at snail pace. ???? I'll keep everyone posted.
~Angel
E-hugs Angel. That's got to be tough. You're in my thoughts.?ÿ
Angel and Wendell y'all are in my prayers! So sorry to hear about your latest tribulations. As soon as I sell my late Mother's house we will be in Portland looking for fun! (and "work" anyone looking to hire a LiDAR guru?). You both can plan on the best meal ever as I will treat you both to a night on the town with?ÿ SWMBO...Thank you both for all you have done with the forum and bringing so many folks together!?ÿ Let's Go Blues! Let's Go Cards!
Angel and Wendell y'all are in my prayers! So sorry to hear about your latest tribulations. As soon as I sell my late Mother's house we will be in Portland looking for fun! (and "work" anyone looking to hire a LiDAR guru?). You both can plan on the best meal ever as I will treat you both to a night on the town with?ÿ SWMBO...Thank you both for all you have done with the forum and bringing so many folks together!?ÿ Let's Go Blues! Let's Go Cards!
Are you moving to the PAC Northwest?! ?§
Keep us posted!!! We know where all of the good food is. ?§
BLUES DID IT!!!!!!!!!!!!!!! SING GLORIA!!!!!!!!!!!!!!!!! I was jumping up and down!!!!!!!!!!!!!!!!! ?????ÿ
Today was my 6 month check-in for my kidneys. Yay! Boo! Eh... Have to do it so...Here's what the doc said.
I have a few minor things going on that will be adjusted but everything else looks good!! YAY!! ????
I will have to have an MRI to rule out a brain aneurysm.
Brain aneurysms are more prevalent in PKD patients. Many die from this rather than the disease itself.
I have had a weird headache for months now, so the doctor wants to rule it out now, rather than wait.
I despise MRI'S. They have to sedate me. But...I'll get er' done! ?????ÿ
I also have to cut down on my protein. My kidneys are leaking protein.
Doc will follow up with an ultrasound and re-check in 6 months. So, my "kidney check-in months" are January and July. Fine with me.
My Doctor said I'm doing everything right and was very impressed at my weight loss, labs, etc... and at my kidney knowledge and my determination to take care of myself and my kidneys. He said he has quite a bit of patients who wait until their kidneys are failing beyond repair, then want to do what I am doing, but it is too late because the damage is already done. He said its always a good day when he has a patient come in that has actually listened to his and his nurses advice and applies it. I said I am a stubborn Italian. I fight back! He laughed... ????
So, there's your update. ?§
This site here explains PKD in a very well written way so even non-medical people can understand it. In case any of you are wondering... ????ÿ
Saw one of my old classmates last week for the first time in probably 5 months. He looked better than he had for a long time. Turns out he had undergone transplant surgery 3 months ago and received a new liver (family curse situation like yours) and a new kidney. There was a problem with the kidney. They put a stent in the new kidney the following day. Two days later they removed the new kidney. But, the new liver is working great. He is back on the kidney list. His sister has the same liver issue and that is what killed their father and grandfather.
Here's the latest from a member in the group. I wanted to pass on to you guys. -Angel
Good afternoon friends and followers.
That is the curse of degenerative ailments.
Hello, I am Richard Abbott's daughter, Gillian (nee Abbott) . He sadly passed away November 2022 a week before his birthday. I have been looking for his friends and in his honour to share with his life story from his radio interview.
Everyone here adored your dad. His visit to Tucson is a memory that I cherish, and I feel lucky and grateful to have spent time with him. I think I can speak for everyone here that we would love if you could share his story with us. Please feel free to contact me directly at webmaster@rpls.com if you'd like to discuss further. Thank you for finding us and posting here! 🙂
Gillian!! Awww your dad spoke fondly of you!!! 💖 He was such a character. We miss him around here.
I still Admin his Baby Boomers site on Facebook. I promised him I would, and a promise is a promise. 😇
Jill,
Yes, we all loved your dad. I was lucky enough to meet him out in Utah and had a fantastic lunch visit. I won't hold the vegemite taste test against him. Thanks for finding us and I'll keep an eye out for any interviews he did.
Andy
