Here is one Saint of a man. An extraordinary person by all definitions.
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About two years ago I lost a friend from grade school days to ALS. He had been one of the strongest, most athletic people one can imagine. Played competitive fast pitch softball until he was nearly 60. School teacher, coach, farmer, parent, grandparent and very religious. It was tough to watch his son and wife load him into a specially designed van just to make it two miles to church. A reminder that no matter how tough we think we have it, there is no comparison to what he, and his family, endured for about four years.
Thanks for bringing this to our attention, Robert.
I canÛªt express how much that SG has meant to people here. He was a wild jock who gave up his body for the team and now from through ALS, he is giving so much too so many sufferers of the ALS. He was from JoboÛªs neck of the woods and I use to tell Jobo on the old board how much he was liked years before he was diagnosed. Through his twitter and FB posts, you see Jobo-like sense of humor.
The passage of the bi-partisan Gleason Act last year has made it possible that ALS people can now talk to their loved ones by using eye reading technology. He has been at the forefront. Micosoft has funded research and development. (I will put up with the annoyances of W10, if this is what the happens to their money). The SG foundation provides the equipment to those who need it. His mantra ÛÏNo White FlagsÛ and ÛÏAwesome ain't EasyÛ has become part of our language.
Ignorant me thought that chronic ALS sufferers were just vegetables in a bed or chair but it took SG to tell me that they are alive and well between the ears with so much wisdom and understanding of life. I can go on.. but I will stop.
but I will sidetrack,
( the old bridge that is in the opening wedding frames of the movie trailer was in my old N.O. neighborhood. Years that I lived there, I never saw anyone get married on the bridge. I had a house on St. John Ct., a few hundred feet from the bridge. Walked or biked it mostly every day. Fly fished along the bayou at night.There were neighborhood corner stores like a family butcher market etc. ItÛªs an old narrow bridge over Bayou St. John that was made into a pedestrian bridge years ago. The city would paint it with that super high glossy silver galvanized looking paint which made it shine in the sun. Everyone called it for decades, the ÛÏSilver BridgeÛ. Just before, I decided to move away from the city, the final straw happened. As the neighborhood was becoming more yuppified or whatever. Some local preservation group decided to paint the bridge a color ( as seen in the trailer) that complimented the landscape, more specifically a hue of a domed aged copper roof of the adjacent church. It kind of irked me, so I went to a meeting and asked ÛÏWhat do we call the Silver Bridge now since yÛªall are going to destroy the local name?Û They never got back to me about that except for irritated snobby glares. People still called it the Silver Bridge after they painted it. It was sort of a code among longtime residents to sort out the new folks in the neighborhood.
