Angel,
I just finished a book called "Deep Medicine". It discussed the implementation of AI in the medical profession. It is currently in use at major hospitals in the US. They utilize your blood samples and various diagnosis submitted by human doctors. The information is digested by AI and it returns a diagnosis and treatment for most all human ailments. The scary part is that AI is 99.8% accurate thus making some Doctors hesitant to utilize this miracle service for fear of personal?ÿ embarrassment due to a misdiagnosis on their behalf. AI also suggests alternate methodology in treatment sometimes dismissing the need for surgery. I would discuss this with your primary physician. It doesn't hurt to ask.
Wishing y'all the best!
B ?????ÿ
Take care of yourself and each other. Keep accentuating the positive.
Be well.
Did you know that you can donate a kidney (you have two) to someone and it doesn't have to be a match? Their organ goes to someone else and you get bumped to the top of a long waiting list.?ÿ
Last month a co-worker with my wife announced that she wants to donate a kidney; who does that? Anyway, we later find out that wifes sister-in-law needs a kidney (look up Goodpasture syndrome) and she lives in Canada. Works cross border! Imagine that.?ÿ
Keep up the diet Angel and Wendell it will help in so many ways.?ÿ
I am sure you are well aware of the advances in treatment for kidney disease. My father did home hemodialysis for years. An old friend does his while over the road trucking in Afghanistan.?ÿ
I realize every situation is different. The point is keep being Angel. Hold that good attitude and continue to take charge of your situation. Lean on Wendell when you need to.
Prayers, Tom?ÿ
Prayers for all.
This site is the biggest family for many of us, as in all families, the greatest strength comes from the love we share.
Paul in PA
Take care, Wendell and Angel. ?ÿI am 63, and time/age work together to create health issues. Hang in there.
Love.
Angel - you and Wendell are (and have been) in my prayers for some time. It sounds like you are doing everything you can to prepare for the road ahead. It is indeed sobering to realize that one is mortal. God bless you both - keep us informed. There are a lot of folks here who really do care.
I have a co-worker who just had a kidney transplant a couple of months ago, he had a rough couple of weeks but is doing great now.?ÿ I'm not sure I'd trust that kidney donor you are thinking of though. ???? ?ÿ
Hey Guys!
Thanks for all of the warm thoughts and positive vibes. I go to my kidney doctor at the end of July. I should know more then. Hopefully my kidneys will be progressing at snail pace. ???? I'll keep everyone posted.
~Angel
E-hugs Angel. That's got to be tough. You're in my thoughts.?ÿ
Angel and Wendell y'all are in my prayers! So sorry to hear about your latest tribulations. As soon as I sell my late Mother's house we will be in Portland looking for fun! (and "work" anyone looking to hire a LiDAR guru?). You both can plan on the best meal ever as I will treat you both to a night on the town with?ÿ SWMBO...Thank you both for all you have done with the forum and bringing so many folks together!?ÿ Let's Go Blues! Let's Go Cards!
Angel and Wendell y'all are in my prayers! So sorry to hear about your latest tribulations. As soon as I sell my late Mother's house we will be in Portland looking for fun! (and "work" anyone looking to hire a LiDAR guru?). You both can plan on the best meal ever as I will treat you both to a night on the town with?ÿ SWMBO...Thank you both for all you have done with the forum and bringing so many folks together!?ÿ Let's Go Blues! Let's Go Cards!
Are you moving to the PAC Northwest?! ?§
Keep us posted!!! We know where all of the good food is. ?§
BLUES DID IT!!!!!!!!!!!!!!! SING GLORIA!!!!!!!!!!!!!!!!! I was jumping up and down!!!!!!!!!!!!!!!!! ?????ÿ
Today was my 6 month check-in for my kidneys. Yay! Boo! Eh... Have to do it so...Here's what the doc said.
I have a few minor things going on that will be adjusted but everything else looks good!! YAY!! ????
I will have to have an MRI to rule out a brain aneurysm.
Brain aneurysms are more prevalent in PKD patients. Many die from this rather than the disease itself.
I have had a weird headache for months now, so the doctor wants to rule it out now, rather than wait.
I despise MRI'S. They have to sedate me. But...I'll get er' done! ?????ÿ
I also have to cut down on my protein. My kidneys are leaking protein.
Doc will follow up with an ultrasound and re-check in 6 months. So, my "kidney check-in months" are January and July. Fine with me.
My Doctor said I'm doing everything right and was very impressed at my weight loss, labs, etc... and at my kidney knowledge and my determination to take care of myself and my kidneys. He said he has quite a bit of patients who wait until their kidneys are failing beyond repair, then want to do what I am doing, but it is too late because the damage is already done. He said its always a good day when he has a patient come in that has actually listened to his and his nurses advice and applies it. I said I am a stubborn Italian. I fight back! He laughed... ????
So, there's your update. ?§
This site here explains PKD in a very well written way so even non-medical people can understand it. In case any of you are wondering... ????ÿ
Saw one of my old classmates last week for the first time in probably 5 months. He looked better than he had for a long time. Turns out he had undergone transplant surgery 3 months ago and received a new liver (family curse situation like yours) and a new kidney. There was a problem with the kidney. They put a stent in the new kidney the following day. Two days later they removed the new kidney. But, the new liver is working great. He is back on the kidney list. His sister has the same liver issue and that is what killed their father and grandfather.
